Two days ago, (see previous post) Primo and I had an interaction in the car that ended up with him pinching a huge bruise into my upper arm, and me speaking in a hurtful way.
I was truly shaken. I sank into an ugly and dark funk. I wrote that post. I felt deeply saddened by this violence, discouraged that we could have such a setback, ashamed that even though my son had hurt me, I wasn't able in that moment to keep my temper in check and stay calm enough to keep from scaring him.
Then we cried separately and together for forty-five minutes, talked, apologized, hugged, and moved on. Here's the rest of the story:
At age 12, Primo is almost as tall as I am now, and though he's very much better at controlling his temper, he does still have trouble with safety issues when he's angry. He said that by the time he thought to calm himself and be safe, he'd already torn apart some things in the car and pinched me. That's his fight-or-flight response and the autism delay.
Tomorrow Spark is going in for his second all-day dyslexia evaluation appointment. I'm so excited to get the data and strategies that we need, but I'm not so happy to give up my only day off to be there. We do know he's right in the middle of the 'spectrum' of dyslexia (forgive the autism metaphor), not severe and not mild. We're starting to be able to tell him about the ways he is smart, and we'll learn how to help him know it for sure.
And well, that Hero, and the music, it's something that's integral to his being, something that cannot change, even if he tried. I think I'm feeling, first, the pre-summer crisis of confidence in our abilities to manage childcare without school; second, a lack of shared purpose in my life with Hero. We need a spoken agreement on our priorities. We've been just surviving and tag-team parenting for so many years now.
Our marriage is a true partnership based on deep love (and wacky humor), but the part where we enjoy each other and have fun together is missing. The majority of the time we spend together occurs when we're asleep. We don't know who's the leader when we're both home at the same time. We don't know how to make conversation at the dinner table when all of us are together.
I'm hoping that a change in schedule at my office may be coming, so that we'll be able to be a complete family more evenings each week. I'm not sure whether that means I will have a new job at a different business, whether my position may be terminated, or whether I'll be allowed to simply work a shorter schedule. My next career step is a big question mark right now.
That brings me to today. Today has been pretty grand. I've breathed deeply. Our geographic area has had a week of stormy weather, drenching downpours, rapidly shifting temperatures, and then sunshine. Today is a mostly sunshine day.
When the boys and I got home after school, Spark went outside to explore the yard and observe bugs. I let the cats out so that they could bask in the sunshine and eat grass tips. They were calmly joyful, as cats can be. I looked through all the little parts of our yard where I like to plant things, and got more ideas for what I'll work on this weekend.
I was a very lazy gardener last year, planting very little, not weeding, not mulching. A perennial that looks very like creeping bellflower (campanula) went to seed and has started taking over our and our neighbors' yards. Time in the garden, just keeping my mind on the plants and getting my hands in the soil, is healing to me. So that's the plan for the weekend.
Dyslexia, gardening, and laundry and family. Sounds all right to me.
Friday, May 31, 2013
Wednesday, May 29, 2013
Sad today
Oh, Lord, I am not the one best suited to raise this child. Please help me. God, please, please help me. I'm married to a man who seems to love music more than he loves me or his family. He is so often distracted and un-present. I have one son who is sweet as pie and so very smart, and dyslexic. This other son, the one who hurt me today, has autism and mental illness. We are just starting to dig our way out of debt after years of being in it up to our eyeballs. I feel like everyone expects me to keep us functioning on an even keel. When I've asked for help, I first get a question about payment for services. I feel so alone. The weight of this life is so much.
Friday, April 19, 2013
Two small confessions.
I have two confessions to make today. First, when I sit on my couch with my laptop on my lap, catching up on all the news of the day, I'm really mostly doing it to keep my lap warm.
Second, I've started to hate being at work. I think it's the complete lack of windows. Three years is enough of this. Also, I no longer feel like I'm making a difference there. I'm not helping enough, and no one really needs me.
And a bonus confession: Winter is not ended here in the Upper Midwest. The tulips are growing and snowdrops have already faded, but it's snowing little f-bomb white pellets and blowing and gray all over. Sigh.
Second, I've started to hate being at work. I think it's the complete lack of windows. Three years is enough of this. Also, I no longer feel like I'm making a difference there. I'm not helping enough, and no one really needs me.
And a bonus confession: Winter is not ended here in the Upper Midwest. The tulips are growing and snowdrops have already faded, but it's snowing little f-bomb white pellets and blowing and gray all over. Sigh.
Sunday, March 17, 2013
Big rig gig
Instead of writing this post, I've been making stew, emptying old condiments from the fridge, watching cartoons with the boys. A new blizzard has arrived, so perhaps the pressure change drove me to the household things. Or perhaps it's just good ol' procrastination.
I feel like this life I'm in is a journey on a long gravel road in a country with no maps.
Some parts are smoother than others. Some are muddy, sloggy, and rutted. There's often no good vista or clearing to tell me where we are or what's coming next. Not a lot of faces of people I know. There's only the onward, the forward, the road.
When I was a girl, one of the things I wanted to be when I grew up was a long-range truck driver. The open road, the big rigs, the time to myself . . . called to me.
Primo has just graduated from his mental health/social skills program, which he started in October of last year. The first few months were very hard; he pushes people to their limits of tolerance, so see whether and how much he can trust them. He pushed almost too hard, sometimes physically, in those first months. He was nearly kicked out of the program on a number of occasions. But the therapy staff there saw something in him, the same something Hero and I see. There is potential for greatness in this boy who sometimes would sooner throw a punch than acquiesce to a simple imperative that's not of his own choosing.
We struggled through it together. Sometimes I'd have to take him home early, because he wasn't able to get into the groove of the day. The police were called a couple of times, when he'd hurt others. It could be scary, knowing Primo had hard work to do on his inner Self, and that he might not up to the day's challenges. He was pushed to learn about his own emotions and triggers, to understand the way the rest of the world would expect him to respond, and how to respond appropriately even when he didn't feel like he could.
But it was a safe place for him to be, this program was. The staff of therapists was strong and usually unflappable, except when praising the kids for good work. They covered the details of almost every day with me. They cared and persevered, when many adults would choose to give up on Primo, or recommend some other program or even an institution of one kind or another.
He ended up with a couple of friends (!!) in the group who actually looked up to him, a graduation celebration, and gave a gift to the program's other kids. It was an ending that suited his journey.
So now we're in the rig again, away from the support of that group, and I'm wondering what comes next. I'm trying to remain calm. I'm nervous, though. There isn't a lot of solitude on this road.
I feel like this life I'm in is a journey on a long gravel road in a country with no maps.
Some parts are smoother than others. Some are muddy, sloggy, and rutted. There's often no good vista or clearing to tell me where we are or what's coming next. Not a lot of faces of people I know. There's only the onward, the forward, the road.
When I was a girl, one of the things I wanted to be when I grew up was a long-range truck driver. The open road, the big rigs, the time to myself . . . called to me.
Primo has just graduated from his mental health/social skills program, which he started in October of last year. The first few months were very hard; he pushes people to their limits of tolerance, so see whether and how much he can trust them. He pushed almost too hard, sometimes physically, in those first months. He was nearly kicked out of the program on a number of occasions. But the therapy staff there saw something in him, the same something Hero and I see. There is potential for greatness in this boy who sometimes would sooner throw a punch than acquiesce to a simple imperative that's not of his own choosing.
We struggled through it together. Sometimes I'd have to take him home early, because he wasn't able to get into the groove of the day. The police were called a couple of times, when he'd hurt others. It could be scary, knowing Primo had hard work to do on his inner Self, and that he might not up to the day's challenges. He was pushed to learn about his own emotions and triggers, to understand the way the rest of the world would expect him to respond, and how to respond appropriately even when he didn't feel like he could.
But it was a safe place for him to be, this program was. The staff of therapists was strong and usually unflappable, except when praising the kids for good work. They covered the details of almost every day with me. They cared and persevered, when many adults would choose to give up on Primo, or recommend some other program or even an institution of one kind or another.
He ended up with a couple of friends (!!) in the group who actually looked up to him, a graduation celebration, and gave a gift to the program's other kids. It was an ending that suited his journey.
So now we're in the rig again, away from the support of that group, and I'm wondering what comes next. I'm trying to remain calm. I'm nervous, though. There isn't a lot of solitude on this road.
Friday, February 22, 2013
Sometimes dreams have such clarity, they must be written down.
Here I am, one morning last summer:
When finally opening her eyes for the day, the sun behind
the green curtains of her bedroom was making patterns like underwater waves on
the ceiling. Leaves moving in the trees
and cars going by on the street outside changed the shadows to look like things
moving in the depths. It was the first
night in the weeks since the heat wave began that they had been able to sleep
with the windows open. She had woken
from a deep, clear, wondering dream.
Joe and his family had moved in next door. It was her own neighborhood, but not her own,
as often happens in dreams. Summertime,
still, with bright hot days that some people love. Through her curtains on summer mornings, she would
look across the space between their houses, and see his wife and children
smiling and playing inside their own house.
Sounds of laughter and music drifted over on those mornings when it was
cool enough to have the windows open.
In her own house, things were quieter. They usually woke up later than Joe’s
household, and kept the curtains closed for longer. Then things became a little stranger in the
dream. Some mornings, she’d awaken
later, and go to the front windows, ready to push back the curtains. Her own big son was quiet, playing a computer
game in the corner of the dining room, shifting softly on the hard wooden
chair. She was still in her short
nightgown, breasts hanging loose, hair all a tangle in back. She’d open the curtains, and there on the
porch was Joe’s wife and a friend of the wife’s, laughing and smiling, having
tea. Startled, she pulled the curtains
shut, metal rings sliding on the metal curtain rods. The wife’s conversation paused. She flicked the corner of the curtain back,
smiled and waved, then retreated.
Another scene, late afternoon on a weekend. Joe’s house, a big, rambling bungalow with a
couple of additions on the back, sits next door. The house is one of the loveliest on their
block, just so interesting and compelling inside and out. But the yard, some would say, was not. Rather small for such a house, and it ran,
unfenced, next to the sidewalk that led down the inside of the block to the
school. Her own house, was smaller,
shabbier, in need of updates and repairs.
Casual and comfortable, if run-down.
The yard, though! Big and
parklike and sunny. Low
maintenance. Fenced off from the schoolyard
behind it with a chainlinked fence and good gates that could be locked. Her family could do what they wanted there.
She came home from a neighborhood walk with her own husband.
Her husband knew about her old feelings
for Joe; at least he knew enough.
Something was happening in their yard, though. A party?
A party for Joe’s older son. Lots
of friends of Joe’s children and family were there, gathered in her yard,
watching a soccer game being played, not in the schoolyard, but on her own
tired lawn. The weather had been hot and
dry for a while, and with the activity of the players, bare patches of dirt and
brown puffs of dust were showing where the grass had quickly given way. His friends were sitting on blankets around
the edges, cheering, snacking, and leaning on the fence line. Other neighbors came by, leaning in toward
the action from the outside of the fence.
Younger children rested their foreheads against the links, making dents
in their skin. Their little fingers
hooked around then links next to them. She dropped her husband’s hand and went over
to Joe.
“What is going on here?!” she didn’t care if she made a
scene. Joe looked at her and smiled, his
eyes calm and that faraway look in them that she could feel before she saw
it. “Oh, just a get-together today. Isn’t it a fun time?” She would not betray her current life. “This is not all right, Joe. I need to talk to you now.”
“You moved in next door.” Her voice was quiet, forceful. “Next door!
I see your wife and your children every day. And I love them with joy and innocence. They are bright and shining in so many ways,
and though I don’t know them well yet, I am so happy to have them near. But this, what, this! You are in our
yard! You! And your wife, and your children, and all
these friends! With the home, and the
life you lead and the ease you have, you know!
This not welcome, Joe!” Heads had turned. She could hear that the players had paused in
their game. He leaned closer to her, his
body’s closeness encouraging her body to turn toward the open gate. Some of the guests near the gate moved
aside. “C’mon,” he said. Let me show you something.” She glanced at her husband, but he had sat
down on the ground, grim. He lifted his
hat, hand brushing over the stubble on his shaved head. He looked away.
She felt weak and weightless at the same time. The players had restarted the game, and
attention turned back to them. It was
almost as if no one noticed her moving away, Joe beside her. They went toward the front door of Joe’s
house. Up three steps to the wide porch,
the door next to a big bay window with a window seat. Comfortable, tasteful furniture stood,
waiting. A box of toys. A porch swing at the far end. It was quieter here. He pushed the latch lever down and the door
swung open. She had not yet been a
visitor here before. He started to say
something to her, but she wasn’t listening. She was looking instead, and feeling how it
felt to be in this, the first room she could see.
It wasn’t what she expected, as houses in dreams often
aren’t. The room was dim and quiet. A big sectional-style couch snugged up
against two walls of the room. Extra
cushions and pillows were scattered, in a very comforting and haphazard
way. A sunlit doorway on the far side of
the room led to the kitchen. The big bay
window was not part of this space. She could
feel him beside her, barely touching the side of her arm with his. Joe. She
sensed he was going to speak, to lead her further.
Instead she awoke and let herself lie there in the bed. She stretched out her arms and pulled her toes
toward the ceiling, Achilles tendons stretching, ankles popping softly. The space next to her was empty, but for the
small striped cat at the foot of the bed. Her husband had left gotten up much
earlier. It was Saturday; she could hear
the boys downstairs. Cicadas pulsing
outside. A look at the clock showed
11:12am—far later than she expected.
Thirteen hours of sleep. Finally,
fully rested. She knew that as soon as
she rose, the cat would thud down from the bed and begin to cry for
breakfast.
Tuesday, January 8, 2013
Thankful, January 8 edition
This blogroll on the side of the screen--yeah, all those blogs I regularly read--these writers are special, hilarious, caring, marvelous people. On the days that I don't have much courage to face the chores or the mystery of my own thoughts, I can still read their words and be strengthened.
I've wanted to write about my transition into married life, into parenthood, into becoming the parent of not one, but two special-challenges kids. (Yes, we've noticed that Spark has his own issues.) And I know I will. But today, today, I just need to day that I am thankful for the people who put their love and their truth into the world. I am thankful for those people who do the everyday living and sharing, who keep showing up and keep going on.
I've wanted to write about my transition into married life, into parenthood, into becoming the parent of not one, but two special-challenges kids. (Yes, we've noticed that Spark has his own issues.) And I know I will. But today, today, I just need to day that I am thankful for the people who put their love and their truth into the world. I am thankful for those people who do the everyday living and sharing, who keep showing up and keep going on.
Saturday, January 5, 2013
Blizzard day, December 20th: early start to Holiday break
Now the snow is here, a blanket for the winter. We've got about 12 inches so far, and more is falling and blowing. It's wet snow, too, perfect for packing and sculpting.
I keep wanting to curl up and sleep some more now, but I did that this morning. I woke up at the regular time and monitored the emails and phones to make sure our business was well and duly closed for the day: phone messages changed, signs up on the front doors, emails sent to all the staff. At least I was able to be in my pajamas and bed all the while. When the flurry of messaging calmed down, I tucked myself back in.
It was after noon when I woke up!
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